New year, same old me!

Aw, heck, it’s that time again when we make resolutions and promise to be a better version of ourselves. Well, maybe this year I will decide that I am enough. Enough, already! Yeah. Why not? Darn it, I’ve been me for going on 59 years, I must have done something right. I hope. Sure, there are things I’d like to change. I’m open to that. I’m particularly open to increasing my income by one thousand per cent! I’d still like to find something which makes me leap out of bed every morning rearing to go.

Let it begin!

HAPPY NEW YEAR, everybody.

Interview with me for Cosmopolitascotland!

As you can see from it (and in case you’re wondering why it’s there) the publication usually likes to include a video which explores the topic of the article from slightly different perspective. In this case I found a nice wee positive snapshot of life from someone with FTD in their own words. In the Spanish version of the article, which you can find below, we found a simple but charming short-film.

Also, here’s the link to the whole “special issue”:

20 things not to say or do to a person with dementia

Creating life with words: Inspiration, love and truth

PowerPoint PresentationThis is a slightly revised and updated list of tips from the one I published here last week with 17 tips. The day after that I also wrote one called My dementia Trumpet call, explaining a little why I’d put together a list in the first place. Of course, there was some angst from a couple of people about some of my points, but overall, mostly consensus, especially by people living with dementia. If it is possible to positively impact the life of even one more person living with dementia, then it would not matter how many people without dementia had disagreed with me.

I presented this new list to two groups yesterday, one a group of professionals at a Diversity Forum in Ararat yesterday morning, and then to a group of mainly family carers and people with dementia at a YOD support group last night, as well as…

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Caregiver’s Negative Agreement & Stigmatization of Those With Dementia

I’d like to quote from this in my PhD if you allow me to Faith?

Still Life With Dementia

When I was diagnosed with dementia, I asked what that meant for my future. Unlike Kate Swaffer’s, Prescribed Disengagement, my questions were met with compassionate solemn looks…but no answers. Like everything else in my life, it was left up to me to figure it out…and to figure out what to do with it. Although, it makes things a bit harder to not be given guidance, I find as I get some distance, that I really prefer things that way because it allows me complete freedom to form my own view of it.

I didn’t relish being put in the situation of having to confront my beloved medical providers with the hard and uncomfortable question of, “just be honest with me, does this mean I am going to die?” Or to have to make them utter the words, it was clear they wished I hadn’t asked them to say, “yes…

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